Site of parents of children with tyrosinemia
useful links - site of the Scientific Center of Children's Health - our page in the social network Vkontakte. - site drug manufacturers "Orfadin" - Russian protein-free pasta - site manufacturer specialized nutrition "Tirozidon." - online health food store with home delivery for Russia - Russian Society of orphan diseases - Inter-regional charitable public organization of invalids "Union of patients and patient organizations with rare diseases."

www.редкий-день.рф Ц International Day for Rare Diseases.